Explore A Month, Heart Month, and more!

Sophia was diagnosed with VSD  and aortic stenosis in utero. I gave birth to her in Seattle, WA (We're from Alaska) because there are no surgeons here in AK. She had her first surgery at one week old. They closed the hole in her heart and repaired the aortic stenosis. We returned home in under a month and all things appeared well. When Sophia was four months old we were medivaced back to Seattle because of scar tissue blocking her artery. A stent was placed in her heart and a year later we…

Sophia was diagnosed with VSD and aortic stenosis in utero. I gave birth to her in Seattle, WA (We're from Alaska) because there are no surgeons here in AK. She had her first surgery at one week old. They closed the hole in her heart and repaired the aortic stenosis. We returned home in under a month and all things appeared well. When Sophia was four months old we were medivaced back to Seattle because of scar tissue blocking her artery. A stent was placed in her heart and a year later we…

Description of the 3 Stages of repair for a hypoplastic left heart. For more info and personal perspective on raising a child with HLHS, please visit http://www.HLHSkids.com.

Description of the 3 Stages of repair for a hypoplastic left heart. My Caleb doesn't have HLHS but was still treated with this series of surgeries. Always like to find sites that explain it well so he can more easily understand his special heart :)

Sophia Grace was born July 8th, 2010 with Tetralogy of Fallot. Sophia was diagnosed when I was 29 weeks pregnant and was monitored by a cardiologist after birth. On October 10th, 2010 she started having TET Spells and was rushed to the hospital during the next six days we were transfered to 3 different hospitals until we finally ended up at Lucile Packard. The night before her surgery we almost lost Sophia but she fought so hard to stay with us. She had open heart surgery October 16th, 2010…

Sophia Grace was born July 2010 with Tetralogy of Fallot. Sophia was diagnosed when I was 29 weeks pregnant and was monitored by a car.

#autism #parent

“Autists are the ultimate square pegs, and the problem with pounding a square peg into a round hole is not that the hammering is hard work. It's that you're destroying the peg.

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