Mason was born with coarctation of the aorta, 4 large VSDs, split sternum, joint cervical vertebrae, an omovertebra on his shoulder and only one kidney. He had his open heart surgery at 1week old where they repaired the coarch and closed one hole. Over time two other holes have closed so only one remains.
The Faces of CHD - Congenital Heart Awareness Week Feb 7-12, 2012 This is my CHD survivor, mis-diagnosed at 9 mo. with asthma, finally after 5 doctors at 18 mo. diagnosed with 5 holes and a cleft valve, surgery at 27 mo. Healthy at 11 years old! http://pinterest.com/ruth_h/the-faces-of-chd-congenital-heart-awareness-week-f/
This is Grace. She is just weeks shy of 5 years old. Grace was born with several severe congenital heart defects. Her heart stopped beating on Feb. 20, 2007 and never beat in her chest without the help of life support again. She received a heart transplant at 19 days old and hasn't looked back since. She has survived multiple surgeries, hospitalizations and medical intervention. She is strong. She is happy. She is a face of CHD.
Our son, Daniel, was post-natally diagnosed with several congenital heart defects at day 2 of life. He underwent open heart surgery at day 7 of life for coarctation of the aorta, several ASDs, and a large VSD at Children’s Hospital Boston. He is now three months old and recovering marvelously. He still has two outstanding congenital heart defects, a bicuspid aortic valve and parachute mitral valve, that are being closely monitored with possible future surgeries pending. We are so…
My daughter was born with a CHD (Congenital Heart Defect). She was left with a lot of scars. Here are some helpful tips on how to help your child cope with and embrace the scars they have from surgery.