Explore 7 Month Olds, Congenital Heart Defect, and more!

Trey Broox Hardy  Born June 2nd 2011  Born with Hypoplastic Left Heart Syndrome with very leaky mitro valve  We were told that his heart wasnt fixable because it was so bad, we were put on the transplant list the day after Trey was born. A month and half later one of the echo's showed the mitro valve not leaking as much, they took our case to the bored and decided to try the surgeries.  Trey was in the CICU for 3 months.He is 7 months old now. He amazes me to watch everyday he is so strong…

Trey Broox Hardy Born June 2nd 2011 Born with Hypoplastic Left Heart Syndrome with very leaky mitro valve We were told that his heart wasnt fixable because it was so bad, we were put on the transplant list the day after Trey was born. A month and half later one of the echo's showed the mitro valve not leaking as much, they took our case to the bored and decided to try the surgeries. Trey was in the CICU for 3 months.He is 7 months old now. He amazes me to watch everyday he is so strong…

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CHD Awareness - According to the March of Dimes, congenital heart defects are the birth defect. In the US alone, over babies are born each year with a congenital heart defect. That translates to 1 out of every 115 to 150 births

I am 37 and was diagnosed at birth with a congenital heart defect TGA (Transposition of the Great Arteries). I had my open heart surgery (Mustard procedure) at the age of 2. Since then I have dealt with congestive heart failure and cardiac arrest. I have also experienced atrial fibrillation requiring several cardio versions and an ablation. In 2009 I received my 6th pacemaker.  My 12 year old niece was was born with DILV (Double Inlet Left Ventricle) with TGA at 3 months old. She has had…

I am 37 and was diagnosed at birth with a congenital heart defect TGA (Transposition of the Great Arteries). I had my open heart surgery (Mustard procedure) at the age of 2. Since then I have dealt with congestive heart failure and cardiac arrest. I have also experienced atrial fibrillation requiring several cardio versions and an ablation. In 2009 I received my 6th pacemaker. My 12 year old niece was was born with DILV (Double Inlet Left Ventricle) with TGA at 3 months old. She has had…

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

Field was born with Double Inlet Left Ventricle, a serious and complex congenital heart defect.  We did not know about the defect before his birth, but by the grace of God, a nurse "happened" to check his oxygen sats before discharge and found that they were very low.  After 2 heart surgeries (Pulmonary Artery Banding and DKS/Bidirectional Glenn Shunt), one heart cath, and more medical check-ups than I can count, we have a healthy, thriving, and very smart toddler.  Field has surpassed all…

The Balcueva Family Memorial Scholarship was established in 1998 in memory of the four young sons Edgar and Mary Jane Balcueva have lost due to a rare congenital heart defect- Eddie, Randy, Brad and Rick.

Matthew was born with an undiagnosed congenital heart defect. Because blood oxygen testing is not mandatory for newborns I almost took him home. I will forever be grateful to a very observant nurse who thought his color was different when she saw him 24 hours after he was born. He had transposition of the great arteries and an ASD (hole). He had a septostomy at 3 days old and open heart surgery at 10 days old. Read more in my blog about our journey.

Matthew was born with an undiagnosed congenital heart defect. Because blood oxygen testing is not mandatory for newborns I almost took him home. I will forever be grateful to a very observant nurse who thought his color was different when she saw him 24 hours after he was born. He had transposition of the great arteries and an ASD (hole). He had a septostomy at 3 days old and open heart surgery at 10 days old. Read more in my blog about our journey.

This is Severin he has CHDs but CHDs do not have him
"Their stats" vs His stats  "CHD" Isn't that what old people have? "Less then .03% chance of these heart defects happening." Who cares it happened to my baby - so that makes it 100% for him! "Only 60% chance of survival." Not today.  PreDiagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too…

This is Severin he has CHDs but CHDs do not have him "Their stats" vs His stats "CHD" Isn't that what old people have? "Less then .03% chance of these heart defects happening." Who cares it happened to my baby - so that makes it 100% for him! "Only 60% chance of survival." Not today. PreDiagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too…

This is Crew.  He was born healthy.  When he was 5 weeks old, something just seemed a little off.  He would go really pale while he slept, and just wasn't thriving like his three older sisters had.  I took him to the pediatrician, who couldn't pin point what was wrong but sent us to the local children's hospital to get checked out.  He was diagnosed with Cor Triatriatum and ASD.  He had emergent open heart surgery that night.  He amazed everyone involved in his care.  He is a little fighter…

This is Crew. He was born healthy. When he was 5 weeks old, something just seemed a little off. He would go really pale while he slept, and just wasn't thriving like his three older sisters had. I took him to the pediatrician, who couldn't pin point what was wrong but sent us to the local children's hospital to get checked out. He was diagnosed with Cor Triatriatum and ASD. He had emergent open heart surgery that night. He amazed everyone involved in his care. He is a little fighter…

Bela, HLHS survivor

Bela, HLHS survivor

Educating parents about congenital heart defects (Infographic)

The Surprisingly Common World of Congenital Heart Defect [INFOGRAPHIC] . somewhat good but also saw that it had some mistakes (like not suggested atrial septal defects can require open surgery based on size)

Samson, a thriving 7yr old boy with HLHS!

Samson, a thriving 7yr old boy with HLHS!

Carley was born a healthy 8lbs 7.5 oz in Dcember 2001.  When she was 2 days old, she started turning dusky (blue) whenever she cried.  Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care.     She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

My Carmela was born with a heart defect.this was before her heart operation. She was in a drug induced coma here.

Caroline - Age 3 1/2   Hypoplastic Left Heart Syndrome  Caroline has undergone all three open heart surgeries related to this defect and is currently doing great!

CHD Awareness - Caroline - Age 3 Hypoplastic Left Heart Syndrome Caroline has undergone all three open heart surgeries related to this defect and is currently doing great!

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