Explore Aortic Stenosis, Only Child, and more!

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented…

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented…

Meet my amazing son Oakes: Today he is doing just fine! Oakes was diagnosed in utero with Truncus Arteriosis. Oakes has had open heart surgeries, dozens of procedures, cath lab trips, unbelievable amounts of medications, support and interventions. He has had complications and surprise diagnosis. Oakes is 11 months old, yet his story is big, and it is complex. Without a doubt part of his story is about donation. He has received donated blood, donated tissue, valves for his heart and most…

Meet my amazing son Oakes: Today he is doing just fine! Oakes was diagnosed in utero with Truncus Arteriosis. Oakes has had open heart surgeries, dozens of procedures, cath lab trips, unbelievable amounts of medications, support and interventions. He has had complications and surprise diagnosis. Oakes is 11 months old, yet his story is big, and it is complex. Without a doubt part of his story is about donation. He has received donated blood, donated tissue, valves for his heart and most…

Sweet Emerson Rose came into this world on April 11, 2011 with hypoplastic left heart syndrome (HLHS). She underwent open heart surgery at 4 days old and came through like a champ. For the next 11 weeks she recovered in the hospital until after 76 days of life, very suddenly on June 26, 2011, God called her home. We are so thankful that we had 76 days with her.

Sweet Emerson Rose came into this world on April 11, 2011 with hypoplastic left heart syndrome (HLHS). She underwent open heart surgery at 4 days old and came through like a champ. For the next 11 weeks she recovered in the hospital until after 76 days of life, very suddenly on June 26, 2011, God called her home. We are so thankful that we had 76 days with her.

Charlotte Delene Ritchie was born on May 14, 2010 with a prenatal diagnosis of Pulmonary Atresia/Intact Ventricular Septum and HRHS.  They said that her heart was "broken" but she never let it show. She had more fight and spunk in her than I had every seen before!  On May 31, 2011, just two short weeks after celebrating her 1st birthday, Charlotte earned her wings.  It was very sudden...very unexpected.  In her short life our little girl endured more than most do in a life time, and she…

Charlotte Delene Ritchie was born on May 14, 2010 with a prenatal diagnosis of Pulmonary Atresia/Intact Ventricular Septum and HRHS. They said that her heart was "broken" but she never let it show. She had more fight and spunk in her than I had every seen before! On May 31, 2011, just two short weeks after celebrating her 1st birthday, Charlotte earned her wings. It was very sudden...very unexpected. In her short life our little girl endured more than most do in a life time, and she…

This means a lot to me too, my Mom was born with a CHD.    CHD Awareness Week 2012 - February 7th-14th. 1 in 100 children are born with a congenital heart defect. Ethan was the 1. He was born on November 14th,2010 but was diagnosed with an intracardiac mass on his septum in utero at 37 weeks. Thankfully we were aware of his condition before he was born, but many chd's go undetected. CHD'S are the number one killer of children.

This means a lot to me too, my Mom was born with a CHD. CHD Awareness Week 2012 - February 7th-14th. 1 in 100 children are born with a congenital heart defect. Ethan was the 1. He was born on November 14th,2010 but was diagnosed with an intracardiac mass on his septum in utero at 37 weeks. Thankfully we were aware of his condition before he was born, but many chd's go undetected. CHD'S are the number one killer of children.

Information about detected heart defects at mid-pregnancy ultrasound, including link to questions to print and take with you to your ultrasound.

Congenital heart defects are problems with the heart’s structure that occur during a baby’s development.

Our Daughter Aine has Tetrology of Fallot.  She is doing very well for as sick as she was at birth.  9 months of fights and struggles and now she is smiling, starting to laugh, working on sitting up and starting to enjoy life!

she is so damn precious! "Our Daughter Aine has Tetrology of Fallot. She is doing very well for as sick as she was at birth. 9 months of fights and struggles and now she is smiling, starting to laugh, working on sitting up and starting to enjoy life!

My son's name is Caleb and he's now 2 yrs. old with Pulmonary Atresia with Intact Ventricular Septum, Tricuspid Stenosis.   He spent the first 4 months in the hospital, awaiting a heart transplant, then ended up getting another open heart surgery instead, Bidirectional Glenn.   He's a happy 2 year old, although he will definitely need more open heart surgery, we take it one day at a time and you can't tell a thing is wrong with him by looking at him.

My son's name is Caleb and he's now 2 yrs. old with Pulmonary Atresia with Intact Ventricular Septum, Tricuspid Stenosis. He spent the first 4 months in the hospital, awaiting a heart transplant, then ended up getting another open heart surgery instead, Bidirectional Glenn. He's a happy 2 year old, although he will definitely need more open heart surgery, we take it one day at a time and you can't tell a thing is wrong with him by looking at him.

I am 37 and was diagnosed at birth with a congenital heart defect TGA (Transposition of the Great Arteries). I had my open heart surgery (Mustard procedure) at the age of 2. Since then I have dealt with congestive heart failure and cardiac arrest. I have also experienced atrial fibrillation requiring several cardio versions and an ablation. In 2009 I received my 6th pacemaker.  My 12 year old niece was was born with DILV (Double Inlet Left Ventricle) with TGA at 3 months old. She has had…

I am 37 and was diagnosed at birth with a congenital heart defect TGA (Transposition of the Great Arteries). I had my open heart surgery (Mustard procedure) at the age of 2. Since then I have dealt with congestive heart failure and cardiac arrest. I have also experienced atrial fibrillation requiring several cardio versions and an ablation. In 2009 I received my 6th pacemaker. My 12 year old niece was was born with DILV (Double Inlet Left Ventricle) with TGA at 3 months old. She has had…

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