Explore Aortic Stenosis, Only Child, and more!

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented…

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented…

CHD awareness week Feb 7-14th. I'm going to take a picture of Bradley like this. I love it!

CHD awareness week Feb I'm going to take a picture of Bradley like this.

Samuel was born with HLHS and Aortic Stenosis. Doctors decided transplant would be the best route for him. At only 3 weeks old he had a heart transplant. He waited 9 days. The average wait is 58 days. He is a living miracle. He has had one episode of rejection and a balloon cath procedure to fix his coarctation. 
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Samuel was born with HLHS and Aortic Stenosis. Doctors decided transplant would

This is Anelise Josephine Mills. She was born March 15,2007 in Cincinnati, OH.  Anelise has a genetic deletion called 22q11 and this is the cause of her CHD.  She was born with an interrupted aortic arch, a large VSD and small ASD, and a bicuspid aortic valve.  She endured her first open heart surgery at six days old and a second at six months old.  She has also had surgery to repair her pharyngeal flap to help with speech.  Anelise currently has a bovine artery in place that will have to be…

This is Anelise Josephine Mills. She was born March in Cincinnati, OH. Anelise has a genetic deletion called and this is the cause of her CHD.

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

Kaden was born 8 lbs 10 oz on December 5, 2006. He appeared to be a perfectly healthy baby boy up until the day after he was born. On the routine newborn physical the doctors noticed Kaden's color was clammy instead of pink. Hours later he was transported to Sacred Heart Children's Hospital to the NICU and diagnosed with multiple heart defects...including Hypoplastic Left Heart Syndrome. Shortly after being diagnosed he was then transported 400 miles away from home to Winnie Palmer Hospital…

Kaden was born 8 lbs 10 oz on December 5, 2006. He appeared to be a perfectly healthy baby boy up until the day after he was born. On the routine newborn physical the doctors noticed Kaden's color was clammy instead of pink. Hours later he was transported to Sacred Heart Children's Hospital to the NICU and diagnosed with multiple heart defects...including Hypoplastic Left Heart Syndrome. Shortly after being diagnosed he was then transported 400 miles away from home to Winnie Palmer Hospital…

This is Broc.He is 4.5 yrs old and was diagnosed with Shones Syndrome  at 8 weeks old.He has had 2 heart caths and 2 heart surgeries.He has also had complications from his heart surgery which leads him to his ilio-femoral bypass surgery this Summer.He also has many immune issues as well as other health issues but through it all you see a charming,compassionate little boy with a great personality.  He will have to have more heart surgeires down the road.We pray that we have the strength to…

We welcome Broc Ethan Davis.Broc had a few hiccups with jaundice so h.

Madelyn Elise was born on August 18, 2006. After a quick hug, she was whisked off to the nursery for "the usual" newborn stuff. After two hours of waiting for her to return to my room, we were told Madelyn had stopped breathing and had to be resuscitated twice. She was sent to the NICU, where she remained for 13 days with the "diagnosis" of Respiratory Distress Syndrome with Suspected Sepsis. With her oxygen saturations dropping and x-rays showing increasing lung congestion, an…

Madelyn Elise was born on August 18, 2006. After a quick hug, she was whisked off to the nursery for "the usual" newborn stuff. After two hours of waiting for her to return to my room, we were told Madelyn had stopped breathing and had to be resuscitated twice. She was sent to the NICU, where she remained for 13 days with the "diagnosis" of Respiratory Distress Syndrome with Suspected Sepsis. With her oxygen saturations dropping and x-rays showing increasing lung congestion, an…

Meet brave heart, Asher, our courageous hero! He is our little heart warrior born October 27, 2010 with Tetralogy of Fallot with Pulmonary Atresia. We were unaware of Asher’s heart defect during pregnancy, so we were shocked and heartbroken when our sweet baby boy was born into this world fighting for his life. He has bravely endured 2 open heart surgeries and 3 heart catheterizations before his 1st birthday at Children’s Hospital of Philadelphia. He also has some developmental de...

Meet brave heart, Asher, our courageous hero! He is our little heart warrior born October 2010 with Tetralogy of Fallot with Pulmonary Atresia.

Our little Zeke was born with multiple heart defects which went undiagnosed for the first SEVEN weeks of his life. I had no idea what signs to look for and the day his little body quit working was a scary one. The ductus arteriosis is part of the heart that bypasses the lungs and takes blood straight to the body while in utero. It normally closes within the first 24 hours of life allowing the lungs to function at full capacity. Zeke's stayed open bypassing the coarctation in his aorta. His…

example of clubbing secondary to pulmonary hypertension in a patient with Eisenmengers syndrome

CHD?  Congenital Heart Defects?  Up until 4 years ago, I had never really heard those words before, let alone think my son would be born with one of the most serious/complex heart defects.   Anyone can have a child born with a Congenital Heart Defect.  Anyone can be that 1 in 100. That is why it is so important to continue to spread awareness and that all babies are closely checked through a routine ultrasound prenatally and through a pulse oximetry newborn screening.

CHD? Congenital Heart Defects? Up until 4 years ago, I had never really heard those words before, let alone think my son would be born with one of the most serious/complex heart defects. Anyone can have a child born with a Congenital Heart Defect. Anyone can be that 1 in 100. That is why it is so important to continue to spread awareness and that all babies are closely checked through a routine ultrasound prenatally and through a pulse oximetry newborn screening.

My sweet Colin was born at 30 weeks gestation along with his 2 triplet brothers via Cesarean section on December 27, 2008.  At 3 pounds and 4 ounces the doctors quickly realized that Colin was working too hard to breathe despite interventions.  An echocardiogram diagnosed his heart defect which is Transposition of the Great Vessels.  To make matters even more difficult, Colin was born with only one coronary artery.  His subclavian artery was grafted to create a new coronary artery on his…

My sweet Colin was born at 30 weeks gestation along with his 2 triplet brothers via Cesarean section on December 27, 2008. At 3 pounds and 4 ounces the doctors quickly realized that Colin was working too hard to breathe despite interventions. An echocardiogram diagnosed his heart defect which is Transposition of the Great Vessels. To make matters even more difficult, Colin was born with only one coronary artery. His subclavian artery was grafted to create a new coronary artery on his…

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